The Experiences of Patients with Deep Brain Stimulation in Parkinson’s Disease: Challenges, Expectations, and Accomplishments

Authors

  • Özlem İbrahimoğlu Nursing Department, Faculty of Health Sciences, İstanbul Medeniyet University, İstanbul
  • Sevinc Mersin Nursing Department, Faculty of Health Sciences, Bilecik Seyh Edebali University, Bilecik
  • Eda Akyol Nursing Department, Faculty of Health Sciences, İstanbul Medeniyet University, İstanbul

DOI:

https://doi.org/10.5644/ama2006-124.281

Keywords:

Deep Brain Stimulation, Parkinson’s Disease, Patient Expectation, Challenge, Accomplishments

Abstract

Objectives. Deep brain stimulation (DBS) is a safe and effective alternative treatment of some movement disorders such as Parkinson's disease. Although DBS is an effective treatment for Parkinson's disease, because of the necessity of surgical intervention, follow-up and the effects on symptoms, this study was carried out to determine the challenges, expectations and accomplishments of patients with DBS in Parkinson’s disease.

Materials and Methods. This qualitative study was carried out at the Neurosurgery Department of a research hospital in Turkey with seven patients who underwent DBS between 2008 and 2018. In the study, the challenges, expectations, and accomplishments of patients were investigated by using three focus group interviews in October 2018.

Results. Among the participants, six patients were male, and one patient was female. The mean age of the patients was 56.85}16.48. Three main themes were revealed in the study. These were (1) Reborn; decrease in dependence, sense of accomplishment, enjoyment of life, (2) Prejudice; perceived as severely ill by others and (3) Fear; not being accustomed to the device, loss of device function.

Conclusion. The results obtained from this study can be used in the process of adaptation to this process by discussing and evaluating the challenges, expectations and accomplishments of the Parkinson's patient in DBS with healthcare professionals and other patients.

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Published

2020-08-01

How to Cite

İbrahimoğlu, Özlem, Mersin, S., & Akyol, E. (2020). The Experiences of Patients with Deep Brain Stimulation in Parkinson’s Disease: Challenges, Expectations, and Accomplishments. Acta Medica Academica, 49(1), 36–43. https://doi.org/10.5644/ama2006-124.281

Issue

Section

Clinical Science